We’ve listed Ehlers-Danlos (which some of our members have) and Loeys-Dietz. Here is some discussion of them and other related conditions. Dave was diagnosed as MASS which is probably closest what what he has, but other researchers think perhaps some other yet to be classified genetic variant. Click here for some information on these other disorders.
- Marfan Syndrome
- MILWAUKEE TO HOST TALL CLUBS INTERNATIONAL WEEKEND
- Tall Clubs International
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