In 1999 during the Pittsburgh TCI Convention the Marfan Foundation also had their conference also in Pittsburgh. TLC had me interviewed by Dr Reid Pyeritz as a person concerned if I had Marfan Syndrome, which I didn’t. As it turned out, Dr Pyeritz misdiagnosed me and said I had Kleinfelter’s Syndrome in which a male has an extra female chromosome whereas I have an extra male chromosome.
The contributors to the film didn’t know each other at the time,, Many years later I would meet Joyce Maddox at a Marfan Conference in Chicago. I also met Sandy Allen in Pittsburgh. Since then, Sandy and Jonathan Greener have passed.
I had posted links to 2 segments of the pre-release of the documentary on facebook and they cancelled my post for reasons I don’t understand, so I am posting the links here.
Joyce and I have been contacted by parents since this program aired back then to say we enlightened them about following up with doctors for symptoms their kids had but didn’t know how to deal with, seeing similarities in us.
Wisconsin’s oldest and most authentic Bavarian Oktoberfest in the Midwest. It includes continuous, traditional German brass bands, folk dancing, singing, yodeling, German food, such as spanferkel, and rollbraten and pigs and chickens, roasted on the spit, beer and dancing! You will see musicians on the tables, conga lines snaking through pavilion, wild fun and laughter!!
Tall Friends from Tall Club of Milwaukee and Paramount Tall Club of Chicago will be joining us!!
Dave is working UWM’s Commencement otherwise he would.
Milwaukee we need YOU!! We are looking for a volunteer photographer for the Walk for Victory on Sunday May 19 2019 • 12:00 pm – 3:00 pm. The event will be held at Greenfield Park #3A, 2028 S 124th St, West Allis, WI 53227. If you are interested in capturing some precious moments on film, please contact me at firstname.lastname@example.org. Thank you for your support – it will make a difference!
The Tall Club of Milwaukee is billing it’s annual holiday party as its New Years Party this year like last, soon to be advertised on Facebook for Saturday Jan 12th. Please share with your tall friends.
Barry has bought the ham and doesn’t want to eat it all himself. So we are having a party and he says:
As scheduled before, it will be held at my house in Menomonee Falls and follow the same pattern as in the past.
The party will start with drinks and appetizers around 6:30pm. Dinner will be served around 8:00pm with the White Elephant Gift Exchange occurring around 10:00pm.
There is no cost for attending the party if you bring a dish to pass. TCM will supply the main course of baked ham and all the drinks.
Please call me to RSVP and to discuss what food item you will be bringing to pass. I will also then give you the address and directions to my house if you need them. I hope to see you all.
Belated Merry Christmas and a fantastic new year.
The Tall Club of Milwaukee Invites You to our Oktoberfest in Milwaukee Gathering, September 7-9, 2018.
Dave Rasmussen, President
Barry Umbs, Treasurer
This is our first Milwaukee Gathering.
It is formatted differently than a traditional Tall Club Weekend.
We have selected the La Quinta Inn & Suites in Glendale Wisconsin as our Gathering hotel. They have offered us a rate of $115.00 per night plus tax including a continental breakfast. The rooms are all large two room suites. Book your rooms early at 414‐962‐6767 to assure you can get a room at this rate. Let them know you are with the Tall Club of Milwaukee room block. The hotel is conveniently located near the Bavarian Bierhaus and the Bayshore Mall. You can drive to the hotel with free parking or if you fly into Mitchel International Airport in Milwaukee you will be picked up and shuttled to the hotel by locals.
Friday evening will start with a short walk to dinner at a nearby restaurant and then drinks plus conversation at a local bar. There will not be a formal Afterhours, but we will be able to congregate at the hotel later in the evening. It is BYOB.
On Saturday we will have tours to the Harley Davidson Museum, shopping in Cedarburg and the Potawatomi Casino as optional daytrips plus we can refer you to lots of other Milwaukee tourist attractions on your own. On Saturday night we will walk to the Bavarian Bierhaus for an evening of old world Gemütlichkeit at Oktoberfest. The Milwaukee, Madison and Chicago Clubs have been enjoying this event for many years. The admission is $5.00. Be prepared for lots of German food and drink at your
expense while you enjoy German bands and entertainment until the cows come home. There won’t be a formal Afterhours but a BYOB area will be available again at the hotel.
There is no registration fee for this gathering. As you should have noticed, you will cover your own expenses during your visit. Please let us know ASAP that you plan on attending so we can give you more information and reserve enough tables in the sheltered Bier Hall.
To register call or text Barry at 414‐520‐1324 or email him at email@example.com.
There is a flyer for download and sharing at tall.org’s weekend page or
Congratulations to Parker Gunnison from Hartland Arrowhead as our selection for our 2018 Jason Daniel Gosz Memorial Scholarship Award from the Tall Club of Milwaukee for $250, recently (and on time) submitted to Tall Clubs International Foundation for their Kae Sumner Einfeldt, Virginia Linquist Winker & Robert Rader Academic Scholarship.
The Tall Club of Milwaukee will host TCI’s first “Gathering” the weekend surrounding September 8th, 2018, of Oktoberfest at Old Heidelberg Park in Glendale run by thebavarianbierhaus.com. Details are being worked on and office announcements will follow in the next 2 weeks. We thank our sister club, the Mad Town Talls of Madison Wisconsin for their annual event there since 2002 for us to expand this to our TCI friends. Here is a picture from one of the past years.